Lichen sclerosus (LS) is a long-term skin condition. A common condition, affecting approximately 1 in 100 women, it causes skin to become thin, whitened, and wrinkled and can cause itching or pain. LS mainly affects the genital area, although it can appear anywhere on the skin. A new valuable resource, designed to empower patients to understand Lichen Sclerosus (LS), obtain treatment, and improve their quality of life , has been collaboratively created to support individuals with LS, along with their families, caregivers, and healthcare providers.
You can read the full guide here or see our 10 key takeaways for an overview
Key Takeaways from the guide
Unknown cause - runs in families, people with LS more likely to also have autoimmune conditions
LS is not contagious
Symptoms include vulval itching, bleeding, fissures (small cracks), burning, painful sex, painful urination and/or defaecation
Its important for all of us to check our vulvas - examine it for signs of changes or something that is not quite right.
Diagnosis usually involves a physical examination and a discussion about your symptoms. Sometimes a biopsy may be needed.
Topical steroids (also known as topical corticosteroids) are currently the best treatment available for LS. (ointment or creams).
If you’ve got vulval lichen sclerosus (LS), keep a check on which parts of your vulva are affected so you can use your medication in the right places.
If you have LS you should get yearly check ups.
In between check ups, keep look out for signs of vulval cancer and precancer such as lumps, patches of raised, thickened, white skin, white patches, darker spots or red inflamed skin/patches or any ulcers or sores.
It's crucial to keep up with your treatment to prevent the progression of LS, which can lead to permanent structural changes to the vulva.
If something doesn’t seem right to you, or you’re worried about a change in the way your vulva looks or feels, it’s important to talk it through with a health professional. The doctor or practice nurse at your local GP surgery is a good place to start.
(c) PCOS Vitality, 2025
Not medical advice. PCOS Vitality is not responsible for external websites.
Always speak to a medical professional for advice.
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